Books
Voluntarily Stopping Eating and Drinking: A Compassionate, Widely-Available Option for Hastening Death. New York, NY: Oxford University Press, 2021. Co-edited with T. Quill, P. Menzel, and J. Schwarz.
Right to Die: The Law of End-of-Life Decisionmaking, 3rd ed. New York: Aspen Publishers, 2014-. With A. Meisel, K. Cerminara.
Book Chapters
Is Consent Required for Clinicians to Make a Determination of Death by Neurologic Criteria?; Death Determination by Neurological Criteria: Areas of Controversy and Consensus. Cham, Switzerland: Springer, 2022. Ed. by A. Lewis and J. Bernat.
Medical Futility; Guidance for Healthcare Ethics Committees, 2nd ed. Cambridge, UK ; New York: Cambridge University Press, 2022. Ed by M. Hester and T. Schonfeld.
Legal Issues – Voluntarily Stopping Eating and Drinking (VSED) by People with Decision-Making Capacity; Voluntarily Stopping Eating and Drinking: A Compassionate, Widely-Available Option for Hastening Death. New York, NY: Oxford University Press, 2021. Ed. by T. Quill, P. Menzel, T. Pope, and J. Schwarz.
Legal Issues – Stopping Eating and Drinking by Advance Directive (SED by AD) for Persons Without Decision-Making Capacity; Voluntarily Stopping Eating and Drinking: A Compassionate, Widely-Available Option for Hastening Death. New York, NY: Oxford University Press, 2021. Ed. by T. Quill, P. Menzel, T. Pope, and J. Schwarz.
Best Practices, Enduring Challenges, and Opportunities for SED by AD; Voluntarily Stopping Eating and Drinking: A Compassionate, Widely-Available Option for Hastening Death. New York, NY: Oxford University Press, 2021. Ed. by T. Quill, P. Menzel, T. Pope, and J. Schwarz.
Resolving Conflicts in Pediatric Palliative Care; Interdisciplinary Pediatric Palliative Care, 2nd ed. New York: Oxford University Press, 2021. With R. Macauley, J. Chrastek, A. Brandtjen, H. Cohen. Ed. by J. Wolfe, P. Hinds, B. Sourkes
International Perspectives on Reforming End-of-Life law; International Perspectives on End-of-Life Law Reform: Politics, Persuasion and Persistence. Cambridge, UK ; New York: Cambridge University Press, 2021. With B. White et al. Ed. by B. White and L. Willmott.
Extrajudicial Resolution of Medical Futility Disputes; International Perspectives on End-of-Life Law Reform: Politics, Persuasion and Persistence. Cambridge, UK ; New York: Cambridge University Press, 2021. Ed. by B. White and L. Willmott.
Implementation and Practice of Physician-Assisted Death: Safeguards; Physician-Assisted Death: Scanning the Landscape: Proceedings of a Workshop. Washington, DC: National Academies of Science Engineering & Medicine, 2018. Ed. by R. English, C. Liverman, C. Cilio, and J. Alper.
Case Study – Mrs. Selano: An Interprofessional Perspective; Palliative Care Nursing: Quality Care to the End of Life. New York: Springer Publishing, 2018. Ed. by M. Matzo and D. Sherman
Brain Death Rejected: Expanding Legal Duties to Accommodate Religious Objections; Law, Religion, and Health in the United States. New York: Cambridge University Press, 2017. Ed. by H. Lynch, I. Cohen, and E. Sepper.
Patient Rights in the ICU; Oxford Textbook of Critical Care. Oxford, UK: Oxford University Press, 2016. With D. White. Ed. by A. Webb, D. Angus, S. Finfer, L. Gattinoni, M. Singer.
Emerging Legal Issues for Providers in the U.S.; Shared Decision-making in Health Care: Achieving Evidence-based Patient Choice, 3rd ed. Oxford, United Kingdom ; New York, NY: Oxford University Press, 2016. With B. Moulton. Ed. by G. Elwyn, A. Edwards, R. Thompson.
Death Penalty; Encyclopedia of Bioethics, 4th ed. Farmington Hills, Mich: Macmillan Reference, 2014. Ed. by B. Jennings.
Quality of Life in Legal Perspective; Encyclopedia of Bioethics, 4th ed. Farmington Hills, Mich: Macmillan Reference, 2014. Ed. by B. Jennings.
Medical Futility and Potentially Inappropriate Treatment; The Oxford Handbook on Ethics at the End of Life. Oxford, UK: Oxford University Press, 2014. With D. White. Ed. by S. Youngner and R. Arnold.
Medical Futility; Guidance for Healthcare Ethics Committees. Cambridge, UK: Cambridge University Press, 2012. Ed. by D. Hester, T. Schonfeld.
The Slow Transition of U.S. Law toward a Greater Emphasis on Prevention; Prevention vs. Treatment: What’s the Right Balance? Oxford: Apha Press, 2012. Ed. H. Faust and P. Menzel.
Medical Futility Statutes: Can/Ought They Be Resuscitated?; The Many Ways We Talk about Death in Contemporary Society: Interdisciplinary Studies in Portrayal and Classification. Lewiston, N.Y.: Edwin Mellen Press, 2009. Ed. by M. Souza, C. Staudt.
Social Contract Theory, Slavery, and the Antebellum Courts; Companion to African-American Philosophy. Malden, MA: Blackwell, 2003. With A. Allen. Ed. by T. Lott and J. Pittman.
Legal Issues: The Right to Privacy and Lawsuits; Airline Passenger Security Screening: New Technologies and Implementation Issues. Washington, D.C.: National Academy Press, 1996. With P. Rothstein.
Law Review Articles
Patient Decision Aids Improve Patient Safety And Reduce Medical Liability, 74 Maine Law Review 73 (2022).
Mitchell Hamline Open Access
Video Advance Directives: Growth and Benefits of Audiovisual Recording, 73 SMU Law Review 161 (2020).
Mitchell Hamline Open Access
Legal History of Medical Aid in Dying: Physician Assisted Death in U.S. Courts and Legislature, 48 New Mexico Law Review 267 (2018).
Mitchell Hamline Open Access
Unbefriended and Unrepresented: Better Medical Decision Making for Incapacitated Patients without Healthcare Surrogates, 33 Georgia State University Law Review 923 (2017).
Mitchell Hamline Open Access
Procedural Due Process and Intramural Hospital Dispute Resolution Mechanisms: The Texas Advance Directives Act, 10 Saint Louis University Journal of Health Law & Policy 93 (2017).
Mitchell Hamline Open Access
Texas Advance Directives Act: Nearly a Model Dispute Resolution Mechanism for Intractable Medical Futility Conflicts, 16 QUT Law Review 22 (2016).
Mitchell Hamline Open Access
Health Care Reform Implementation in Minnesota: Mission Advanced but Not Accomplished, 38 Hamline Law Review 161 (2015).
Mitchell Hamline Open Access
The Growing Power of Healthcare Ethics Committees Heightens Due Process Concerns, 15 Cardozo Journal of Conflict Resolution 425 (2014).
Mitchell Hamline Open Access | SSRN
Limiting Liberty to Prevent Obesity: Justifiability of Strong Hard Paternalism in Public Health Regulation, 46 Connecticut Law Review 1859 (2014).
Mitchell Hamline Open Access | SSRN
Legal, Medical, and Ethical Issues in Minnesota End-of-Life Care: An Introduction to the Symposium, 36 Hamline Law Review 139 (2013).
Mitchell Hamline Open Access | SSRN
Clinicians May Not Administer Life-Sustaining Treatment Without Consent: Civil, Criminal, and Disciplinary Sanctions, 9 Journal of Health & Biomedical Law 213 (2013).
Mitchell Hamline Open Access | SSRN
Dispute Resolution Mechanisms for Intractable Medical Futility Disputes, 58 New York Law School Law Review 347 (2013/14).
Mitchell Hamline Open Access | SSRN
Lessons from Tragedy: Part Two, 19 Widener Law Review 239 (2013). With M. Barbieri, J. Collins, S. Cook, G. Smith.
SSRN | HeinOnline
Physicians and Safe Harbor Legal Immunity, 21 Annals of Health Law 121 (2012).
Mitchell Hamline Open Access | SSRN
Voluntarily Stopping Eating and Drinking: A Legal Treatment Option at the End of Life, 17 Widener Law Review 363 (2011). With L. Anderson.
Mitchell Hamline Open Access | SSRN
Foreword: Symposium: Health Law and the Elderly: Managing Risk at the End of Life, 17 Widener Law Review i (2011).
SSRN | HeinOnline
Surrogate Selection: An Increasingly Viable, but Limited, Solution to Intractable Futility Disputes, 3 Saint Louis University Journal of Health Law & Policy 183 (2010).
Mitchell Hamline Open Access | SSRN
Multi-Institutional Healthcare Ethics Committees: The Procedurally Fair Internal Dispute Resolution Mechanism, 31 Campbell Law Review 257 (2009).
Mitchell Hamline Open Access | SSRN
Involuntary Passive Euthanasia in U.S. Courts: Reassessing the Judicial Treatment of Medical Futility Cases, 9 Marquette Elder’s Advisor 229 (2008).
Mitchell Hamline Open Access | SSRN
Rethinking Medical Liability: A Challenge to Defense Lawyers, Trial Lawyers, Medical Providers, and Legislators: An Introduction to the Symposium, 37 University of Memphis Law Review 455 (2007).
Mitchell Hamline Open Access | SSRN
Medical Futility Statutes: No Safe Harbor to Unilaterally Refuse Life-Sustaining Treatment, 75 Tennessee Law Review 1 (2007).
Mitchell Hamline Open Access | SSRN
Mediation at the End of Life: Getting Beyond the Limits of the Talking Cure, 23 Ohio State Journal on Dispute Resolution 143 (2007). With E. Waldman.
Mitchell Hamline Open Access | SSRN
Monstrous Impersonation: A Critique of Consent-Based Justifications for Hard Paternalism, 73 UMKC Law Review 681 (2005).
Mitchell Hamline Open Access | SSRN
Is Public Health Paternalism Really Never Justified? A Response to Joel Feinberg, 30 Oklahoma City University Law Review 121 (2005).
Mitchell Hamline Open Access | SSRN
Counting the Dragon’s Teeth and Claws: the Definition of Hard Paternalism, 20 Georgia State University Law Review 659 (2004).
Mitchell Hamline Open Access | SSRN
Balancing Public Health Against Individual Liberty: The Ethics of Smoking Regulations, 61 University of Pittsburgh Law Review 419 (2000).
Mitchell Hamline Open Access | SSRN
The Maladaptation of Miranda to Advance Directives: A Critique of the Implementation of the Patient Self-Determination Act, 9 Health Matrix: Journal of Law-Medicine 139 (1999).
Mitchell Hamline Open Access | SSRN
Medical Journal Articles
When Persons Facing Dementia Choose to Hasten Death: Current Legal, Ethical, Medical, and Social Considerations in the United States, 54 (S1) Hastings Center Report S11-S21 (2024). With E. Largent, J. Lowers, T. Quill, M. Wynia.
Read the Article
Guiding the Future: Rethinking The Role of Advance Directives in the Care of People with Dementia, 54(S1) Hastings Center Report S33–S39 (2024). With B. Gaster.
Read the Article
Making Medical Treatment Decisions for Unrepresented Hospitalized Patients, American Journal of Medicine (2024). With R. Marshall Felder, K. Luenprakansit, and D. Magnus.
Read the Article
Medical Aid in Dying to Avoid Late-Stage Dementia, 72 Journal of the American Geriatrics Society 1-7 (2024). With L. Brodoff.
Time for Federal Standards on Death Determination: The National Determination of Death Act, 24(1) The American Journal of Bioethics 111-113 (2024).
Response: No Consent to Brain Death Testing, Journal of Medical Ethics Online First (December 28, 2023). With A. Ruck Keene and J. Chandler.
Ethical Issues Encountered in the Practice of Aid in Dying: A Survey of Health Care Professionals, 1 Journal of Aid-in-Dying Medicine 120-129 (2023). With Y. Vieira, J. Abbott, and C. Miller.
Aid in Dying Legal Corner: Patients with Limited Ability to Communicate, 1 Journal of Aid-in-Dying Medicine 20-23 (2023).
Brain Death: Controversies, Changes, and Strategies in Canada, 9(2) Journal of Hospital Ethics 59-60 (2023).
Top Ten Things Clinical Ethicists Need to Know About VSED, 9(2) Journal of Hospital Ethics 60 (2023).
Medical Aid in Dying Ethics Consultation, 9(2) Journal of Hospital Ethics 91 (2023).
Permit Assisted Self-Administration: A Response to Open Peer Commentaries on Neurologic Diseases and Medical Aid in Dying: Aid-in-Dying Laws Create an Underclass of Patients Based on Disability, 23(9) American Journal of Bioethics W9-W14 (2023). With L. Shavelson, M. Battin, A. Ouellette, and B. Kluger.
Neurologic Diseases and Medical Aid in Dying: Aid-in-Dying Laws Create an Underclass of Patients Based on Disability, 23(9) American Journal of Bioethics 5-15 (2023). With L. Shavelson, M. Battin, A. Ouellette, and B. Kluger.
Pediatric Decision Making: Consensus Recommendations, 152(3) Pediatrics e2023061832 (2023). With E. Salter, D. Hester, L. Vinarcsik [et al.]
SED by AD: Prepare to Respect Patient Wishes, 24 JAMDA – Journal of the American Medical Directors Association (May 31, 2023). With D. Haimowitz.
Response to Resolution A19 Regarding Stopping Eating and Drinking by Advance Directives, 24(6) JAMDA – Journal of the American Medical Directors Association e1-e2 (June 2023). With L. Volicer, K. Steinberg, S. Terman.
Hospice Nurse Ethics and Institutional Policies Toward Medical Aid in Dying, 123(6) American Journal of Nursing 37-43 (June 2023). With J. Abbott, J. Kerwin, C. Holden, M. Battin, C. Miller.
Recommendations of the International Donation and Transplantation Legislative and Policy Forum, 9(5) Transplantation Direct e1395 (May 2023). With M. Toews, J. Chandler, R. Pape, M. Weiss, A. Sandiumenge.
Consent for Death Determination Testing – Recommendations of the Definition and Determination of Death Project, 70(4) Canadian Journal of Anesthesia 570-584 (April 2023). With others.
Navigating Disagreement and Conflict in the Context of a Brain-based Definition of Death, 70(4) Canadian Journal of Anesthesia 724-735 (April 2023). With others.
A Brain-Based Definition of Death and Criteria for its Determination After Arrest of Circulation or Neurologic Function in Canada: A Clinical Practice Guideline, 70(4) Canadian Journal of Anesthesia 483-557 (April 2023). With others.
Legal Considerations for the Brain-Based Definition of Death, 70(4) Canadian Journal of Anesthesia 659-670 (April 2023). With others.
Traveling Across States for Prohibited Treatments: Medical Aid in Dying and Looming Battles Over Abortion, 38 Journal of General Internal Medicine 517-519 (2023). With I. Cohen & E. Adashi.
Use Certified Patient Decision Aids to Facilitate Shared Decision Making at the Margins of Viability, 22(11) American Journal of Bioethics 49-51 (2022).
Neurologic Diseases and Medical Aid in Dying: Aid-in-Dying Laws Create an Underclass of Patients Based on Disability, 22 American Journal of Bioethics (2022). With L. Shavelson, M. Battin, A. Ouellette, and B. Kluger.
Counterpoint: Whether Informed Consent Should Be Obtained for Apnea Testing in the Determination of Death by Neurological Criteria: No, 161(5) CHEST 1145-1147 (2022).
Rebuttal from Dr. Pope: Whether Informed Consent Should Be Obtained for Apnea Testing in the Determination of Death by Neurological Criteria, 161(5) CHEST 1148-1149 (2022).
Voluntarily Stopping Eating and Drinking: A Lesser Known, Widely Available Palliative Option of Last Resort, 63(5) Journal of Pain & Symptom Management 798 (May 2022). With others.
Revise the UDDA to Align the Law with Practice through Neuro-Respiratory Criteria, 98(13) Neurology 532-536 (2022) With A. Omelianchuk, J. Bernat, A. Caplan, D. Greer, C. Lazaridis, A. Lewis, L. Friedman Ross, and D. Magnus.
Medical Decision-Making Practices for Unrepresented Residents in Nursing Homes, 23(3) Journal of the American Medical Directors Association 488-492 (2022). With H. Kim, M. Perkins, P. Comer, M. Song.
Medical Aid in Dying and Dementia Directives, 4(2) Canadian Journal of Bioethics 82-86 (2021).
Avoid Advanced Dementia with an Advance Directive for Stopping Eating and Drinking, 134(9) American Journal of Medicine E502 (2021). With T. Quill, P. Menzel, J. Schwarz.
Addressing Conflicts of Interest in Health and Medicine: Current Evidence and Implications for Patient Decision Aid Development, 41(7) Medical Decision Making 768-779 (2021). With R. Thompson, Z. Paskins, B. Main, E. Chan, B. Moulton, M. Barry, and C. Braddock.
Medical Aid in Dying: Key Variations among U.S. State Laws, 14(1) Journal of Health & Life Sciences Law 25-59 (Oct. 2020).
Why Should We See Brain Death as Socially Situated?, 22(12) AMA Journal of Ethics E983-985 (December 2020). Guest editor of issue with Ariane Lewis.
Nursing Home Staff’s Perceptions of Healthcare Decision Making for Unbefriended Residents, 4(1) Innovation in Aging 384 (2020). With H. Kim, M. Perkins, P. Comer, M. Song.
Is There a Right to Delay Determination of Death by Neurologic Criteria?, 77(11) JAMA Neurology 1347-1348 (2020). With A. and R. Bonnie.
Determination of Brain Death / Death by Neurologic Criteria – The World Brain Death Project, 324(11) JAMA 1078-1097 (2020). With D. Greer et al.
Reply to Weber: Treatment Decisions for Unrepresented Patients: ATS/AGS Policy Statement Lacks Sufficient Guidance, 202 American Journal of Respiratory & Critical Care Medicine (Aug. 17, 2020). With L. Cederquist et al.
It’s Time to Revise the Uniform Determination of Death Act, 173(1) Annals of Internal Medicine 75 (2020).
Brain Death Testing: Time for National Uniformity, 20(6) American Journal of Bioethics 1-3 (2020).
Making Medical Treatment Decisions for Unrepresented Patients in the ICU: An Official ATS/AGS Policy Statement, 201(10) American Journal of Respiratory & Critical Care Medicine 1182-1192 (2020). With multi-professional committee.
Hospital Mergers and Conscience-Based Objections — Growing Threats to Access and Quality of Care, 382(15) New England Journal of Medicine 1388-1389 (2020). With I. Wolfe.
It’s Time to Revise the Uniform Determination of Death Act, 172(2) Annals of Internal Medicine 143-144 (2020). With A. Lewis and R. Bonnie.
Revising the Uniform Determination of Death Act: Response to Miller and Nair-Collins, Hastings Bioethics Forum (January 29, 2020). With A. Lewis and R. Bonnie.
Determination of Death by Neurologic Criteria in the United States: The Case for Revising the Uniform Determination of Death Act, 47(4) (Supp.) Journal of Law, Medicine, & Ethics 9-24 (2019). With A. Lewis, L. Epstein, D. Greer, M. Kirschen, M. Rubin, J. Russell, R. Bonnie.
Assistance with Eating and Drinking Only When Requested Can Prevent Living with Advanced Dementia, 20(11) JAMDA 1353-1355 (2019). With L. Volicer and K. Steinberg.
Stopping Eating and Drinking by Advance Directives (SED by AD) in the ALF and PALTC Setting, 20 Journal of the American Medical Directors Association (JAMDA) (2019). With L. Volicer, K. Steinberg, and S. Terman.
Five Things Clinicians Should Know When Caring for Unrepresented Patients, 21(7) AMA Journal of Ethics 581-585 (July 2019).
Informed Consent Requires Understanding: Complete Disclosure Is Not Enough, 19(5) American Journal of Bioethics 27-28 (2019).
Whether, When and How to Honor Advance VSED Requests for End-Stage Dementia Patients, 19(1) American Journal of Bioethics 90-92 (2019).
Firing Your Patient: How to Terminate a Treatment Relationship, ASCO Post (September 10, 2019).
ASCO Post
Should You Become an Expert Witness in a Legal Proceeding? Here Are the Pros and Cons, ASCO POST (August 25, 2019).
ASCO POST
Parental Treatment Refusals: What Your Responsibilities Are When Mom and Dad Decline Cancer Treatment for a Child, ASCO Post (July 25, 2019).
ASCO Post
Curbside Consults: New Liability Risks to Avoid When You Are Not a Patient’s Physician, ASCO Post (June 25, 2019).
ASCO Post
Full Disclosure: What Oncologists Must Tell Patients about Their Experience and Training, ASCO Post (April 10, 2019).
ASCO Post
Healthcare Fraud Prosecutions Are on the Rise: Here’s What Oncologists Need to Know to Avoid Unwittingly Committing Health-Care Fraud, ASCO Post (March 10, 2019).
ASCO Post
New Regulations Require Better Communication With Patients Who Have Disabilities and Limited English Proficiency, ASCO Post (Jan. 25, 2019).
ASCO Post
The Best Interest Standard for Health Care Decision Making: Definition and Defense, 18(8) American Journal of Bioethics 36-38 (2018).
New Laws Limiting Opioid Prescriptions Create Undue Barriers for Patients With Cancer and Cancer Survivors, ASCO Post (Sept. 25, 2018).
ASCO Post
Expanding the Use of Provider Orders for Life-Sustaining Treatment for Patients With Advanced Cancer, ASCO Post (Sept. 10, 2018).
ASCO Post
Why Oncologists Should Decline to Participate in the Right to Try Act, ASCO Post (Aug. 10, 2018).
ASCO Post
Voluntarily Stopping Eating and Drinking Is Legal—and Ethical—for Terminally Ill Patients Looking to Hasten Death, ASCO Post (June 25, 2018).
ASCO Post
Decision Aids Reflect Patients’ Values and Preferences for Care: So Why Aren’t More Oncologists Using Them?, ASCO Post (May 10, 2018).
ASCO Post
How to Respond to a Patient’s Discriminatory Request for a Different Clinician, ASCO Post (Apr. 10, 2018).
ASCO Post
Legal Duties of Clinicians When Terminally Ill Patients With Cancer or Their Surrogates Insist on ‘Futile’ Treatment, ASCO Post (Mar. 10, 2018).
ASCO Post
Providing Cancer Treatment Without Patient Consent, ASCO Post (Feb. 25, 2018).
ASCO Post
Brain Death and the Law: Hard Cases and Legal Challenges, 48 Hastings Center Report S46-S48 (2018).
Wiley
The 50-Year Legacy of the Harvard Report on Brain Death, 320(4) JAMA 335-336 (2018). With R. Truog, D. Jones.
Voluntarily Stopping and Eating and Drinking Among Patients With Serious Advanced Illness—A Label in Search of a Problem?—Reply, 178(5) JAMA Internal Medicine 727 (2018). With T Quill, L Ganzini, and R Truog.
Voluntarily Stopping Eating and Drinking Among Patients With Serious Advanced Illness—Clinical, Ethical, and Legal Aspects, 178(1) JAMA Internal Medicine 123-127 (2018). With T. Quill, L. Ganzini, R. Truog.
Charlie Gard’s Five Months in Court: Better Dispute Resolution Mechanisms for Medical Futility Disputes, 44 Journal of Medical Ethics 436-437 (2018)
Controlling the Misuse of CPR with Certified Patient Decision Aids and POLST, 17(2) American Journal of Bioethics 35-37 (2017).
Medical Aid in Dying: When Legal Safeguards Become Burdensome Obstacles, ASCO Post (Dec. 25, 2017).
ASCO Post
Voluntarily Stopping Eating and Drinking (VSED) to Hasten Death: May Clinicians Legally Support Patients to VSED? 15 BMC Medicine 187 (2017).
Download the PDF
Informed Consent and the Oncologist: Legal Duties to Discuss Costs of Treatment, ASCO POST (Nov. 25, 2017).
ASCO POST
New Legal Guidelines for Determination of Brain Death, 14 Journal of Bioethical Inquiry 323-328 (2017).
Legal Briefing: Unwanted Cesareans and Obstetric Violence, 28 Journal of Clinical Ethics 163-173 (2017).
Legal Briefing: New Penalties for Disregarding Advance Care Directives and DNR Orders, 28 Journal of Clinical Ethics 74-81 (2017).
Certified Patient Decision Aids: Solving Persistent Problems with Informed Consent Law, 45 Journal of Law, Medicine & Ethics 12-40 (2017).
Brain Death Forsaken: Growing Conflict and New Legal Challenges, 37(3-4) Journal of Legal Medicine 265-324 (2017).
TRIAD VIII: Nationwide Multicenter Evaluation to Determine Whether Patient Video Testimonials Can Safely Help Ensure Appropriate Critical Versus End-of-Life Care, 13(2) Journal of Patient Safety 51-61 (2017). With F. Mirarchi et al.
Physician Power to Declare Death by Neurologic Criteria Threatened, 26 Neurocritical Care 446-449 (2017). With A. Lewis.
Revolutionizing Informed Consent: Empowering Patients with Certified Decision Aids, 10 The Patient – Patient-Centered Outcomes Research 537-539 (2017). With D. Lessler.
Medical Futility and Potentially Inappropriate Treatment: Better Ethics with More Precise Definitions and Language, 60(3) Perspectives in Biology and Medicine 423-427 (2017).
Response: Reason-Giving and Medical Futility: Contrasting Legal and Social Discourse in the United States with the United Kingdom and Ontario, Canada, 150(6) CHEST 1426 (2016). With G. Bosslet and M. Baker.
Reason-Giving and Medical Futility: Contrasting Legal and Social Discourse in the United States with the United Kingdom and Ontario, Canada, 150(3) CHEST Journal 714-721 (2016). With G. Bosslet, M. Baker.
Legal Standards for Brain Death and Undue Influence in Euthanasia Laws, 13 Journal of Bioethical Inquiry 173-178 (2016).
Legal Briefing: Stopping Non-Beneficial Life-Sustaining Treatment without Consent, 27(3) Journal of Clinical Ethics 254-264 (2016). With K. Kemmerling.
Mandated Reporter and Compulsory Reporting Duties, 27(1) Journal of Clinical Ethics, 76-83 (2016).
Re: Physicians’ Opinions about Accommodating Religiously Based Requests for Continued Life-Sustaining Treatment, 52(5) Journal of Pain and Symptom Management e3 (2016).
Clinical Criteria for Physician Aid-in-Dying, 19(3) Journal of Palliative Medicine 259-262 (2016). With D. Orentlicher and B. Rich.
Introduction: Voluntarily Stopping Eating and Drinking, 6(2) Narrative Inquiry in Bioethics 75-77 (2016).
Decision-Making: At the End of Life and the Provision of Pretreatment Advice, 12 Journal of Bioethical Inquiry 389-394 (2015). With B. Richards.
The Texas Advance Directives Act: Must a Death Panel Be a Star Chamber?, 15 American Journal of Bioethics 42-44 (2015).
Statement on Futility and Goal Conflict in End-of-Life Care in ICU Medicine, 191(11) American Journal of Respiratory and Critical Care Medicine 1318-1330 (2015). With ATS Ethics Committee and other external content experts.
An Official American Thoracic Society Policy Statement: Managing Conscientious Objections in Intensive Care Medicine, 191(2) American Journal of Respiratory and Critical Care Medicine 219-227 (2015). With M. Lewis-Newby, M. Wiccalir, ATS Ethics Committee & other external content experts
SSRN
Brain Death: Legal Duties to Accommodate Religious Objections (letter to the editor), 148(2) CHEST Journal e69 (2015).
CHEST Journal
Legal Briefing: Medicare Coverage of Advance Care Planning, 26(4) Journal of Clinical Ethics 361-367 (2015).
Legal Briefing: Adult Orphans and the Unbefriended: Making Medical Decisions for Unrepresented Patients without Surrogates, 26(2) Journal of Clinical Ethics 180-188 (2015).
Legal Briefing: Coerced Treatment and Involuntary Confinement for Contagious Disease, 26(1) Journal of Clinical Ethics 73-83 (2015). With H. Bughman.
Brain Death: Legal Obligations and the Courts, 35(2) Seminars in Clinical Neurology: The Clinical Practice of Brain Death Determination 174-179 (2015). With C. Burkle.
The Changing Legal Climate for Physician Aid in Dying, 311(19) JAMA 1961-1962 (2014). With D. Orentlicher, B. Rich.
SSRN
Legal Briefing: Brain Death and Total Brain Failure, 25(3) Journal of Clinical Ethics 245-257 (2014).
SSRN
Legal Briefing: Informed Consent in the Clinical Context, 25(2) Journal of Clinical Ethics 152-174 (2014). With M. Hexum.
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Legal Briefing: Voluntarily Stopping Eating and Drinking, 25(1) Journal of Clinical Ethics 68-80 (2014). With A. West.
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Advance Care Planning for End-Stage Kidney Disease (Protocol), 2013 Cochrane Database of Systematic Reviews (2013). With A. Effiong, L. Shinn, J. Raho.
Wiley
Who Makes the Decisions, Especially When it Concerns Minors?, 10(4) Journal of Bioethical Inquiry 441-444 (2013). With B. Richards.
Legal Briefing: Home Birth and Midwifery, 24(3) Journal of Clinical Ethics 293-308 (2013). With D. Fisch.
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Legal Briefing: The New Patient Self-Determination Act, 24(2) Journal of Clinical Ethics 156-167 (2013).
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Legal Briefing: Shared Decision Making and Patient Decision Aids, 24(1) Journal of Clinical Ethics 70-80 (2013). With M. Hexum.
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Making Medical Decisions for Patients without Surrogates, 369(21) New England Journal of Medicine 1976-1978 (2013).
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Review of Lawrence J. Schneiderman and Nancy S. Jecker, Wrong Medicine: Doctors, Patients, and Futile Treatment, 12(1) American Journal of Bioethics 49-51 (2012).
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Facebook Can Improve Surrogate Decision Making, 12(10) American Journal of Bioethics 43-45 (2012).
SSRN | Ebsco
Legal Fundamentals of Surrogate Decision Making, 141(4) CHEST Journal 1074-1081 (2012).
SSRN
The Courts, Futility, and the Ends of Medicine, 307(2) JAMA 151-152 (2012). With D. White.
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Legal Briefing: POLST: Physician Orders for Life-Sustaining Treatment, 23(4) Journal of Clinical Ethics 353-372 (2012). With M. Hexum.
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Legal Briefing: The Unbefriended: Making Healthcare Decisions for Patients without Surrogates (Part 2), 23(2) Journal of Clinical Ethics 177-192 (2012). With T. Sellers.
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Legal Briefing: The Unbefriended: Making Healthcare Decisions for Patients without Surrogates (Part 1), 23(1) Journal of Clinical Ethics 84-96 (2012). With T. Sellers.
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Responding to Requests for Non-Beneficial Treatment, 5(1) MD-Advisor: Journal for the New Jersey Community 12-17 (Winter 2012).
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Law’s Impact on the Resolution of End-of-Life Conflicts in the ICU, 39 Critical Care Medicine 223-224 (2011).
Legal Briefing: Medically Futile and Non-Beneficial Treatment, 22(3) Journal of Clinical Ethics 277-296 (2011).
SSRN
The Best Interest Standard: Both Guide and Limit to Medical Decision Making On Behalf of Incapacitated Patients, 22(2) Journal of Clinical Ethics 134-138 (2011).
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Legal Briefing: Healthcare Ethics Committees, 22(1) Journal of Clinical Ethics 74-93 (2011).
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Introduction: Caring for the Seriously Ill: Cost and Public Policy, 39(2) Journal of Law, Medicine & Ethics 111-113 (2011). With A. Barnato, R. Arnold.
SSRN | HeinOnline
Conscientious Objection by Health Care Providers, 17 Lahey Clinic Journal of Medical Ethics 4 (2011).
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Restricting CPR to Patients Who Provide Informed Consent Will Not Permit Physicians to Unilaterally Refuse Requested CPR, 10(1) American Journal of Bioethics 82-83 (2010).
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The Case of Samuel Golubchuk: The Dangers of Judicial Deference and Medical Self-Regulation, 10(3) American Journal of Bioethics 59-61 (2010).
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Resolving Conflicts with Surrogate Decision Makers, 137(1) CHEST Journal 238-239 (2010).
CHEST Journal
Legal Briefing: Crisis Standards of Care and Legal Protections During Disasters and Emergencies, 21(4) Journal of Clinical Ethics 358-367 (2010). With M. Palazzo.
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Legal Briefing: Organ Donation, 21(3) Journal of Clinical Ethics 243-263 (2010).
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Legal Briefing: Conscience Clauses and Conscientious Refusal, 21(2) Journal of Clinical Ethics 163-180 (2010).
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Legal Update, 21(1) Journal of Clinical Ethics 83-85 (2010).
Legal Briefing: Informed Consent, 21(1) Journal of Clinical Ethics 72-82 (2010).
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The Topography and Geography of U.S. Health Care Regulation, 38(2) Journal of Law, Medicine & Ethics 427-432 (2010).
SSRN | HeinOnline
Controversies Abound in End-of-Life Decisions, 18(5) American Journal of Critical Care 400 (2009).
Legal Briefing: Advance Care Planning, 20(4) Journal of Clinical Ethics 289-296 (2009).
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Legal Update, 20(3) Journal of Clinical Ethics 287-288 (2009).
Legal Briefing: Medical Futility and Assisted Suicide, 20(3) Journal of Clinical Ethics 274-286 (2009).
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2008-2009 National Health Law Moot Court Competition, 30 Journal of Legal Medicine 443-466 (2009).
SSRN | Westlaw
The Pure Process Procedural Approach to Medical Futility (eLetter), 35 Journal of Medical Ethics 369 (2009).
EMTALA: Its Application to Newborn Infants, 4 ABA Health eSource No. 7 (March 2008).
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Multi-Institutional Hospital Ethics Committees: For Rural Hospitals and Urban Ones Too, 8(4) American Journal of Bioethics 69-71 (2008).
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DNAR as Default Status: Desirable in Principle, Difficult in Practice, 17 American Journal of Critical Care 404 (2008).
The Language of Living Wills, 178 Canadian Medical Association Journal 1324 (2008).
CMAJ
Futility: The Limits of Mediation, 134(4) CHEST Journal 888-889 (2008). With E. Waldman.
CHEST Journal
From Theoretical Foundations and Methods to Practical Applications: My Bioethics Education at Georgetown, 2 American Journal of Bioethics 36-37 (2002).
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Other Publications
Medical Aid in Dying: Time for Evidence-based Legislation, KevinMD (January 16, 2024).
Do We Know the Impacts of Living Wills & the POLST Paradigm on the Health & Life Insurance Sectors, 43 NAEPC Journal of Estate and Tax Planning (Dec. 2023). With F. Mirarchi and A. Erman.
Medical Aid in Dying: Ethical and Legal Issues (UpToDate Database Entry). Waltham, MA: Wolters Kluwer (2023). With L. Shavelson and M. Battin.
Medical Aid in Dying: Clinical Considerations (UpToDate Database Entry). Waltham, MA: Wolters Kluwer (2023). With L. Shavelson and M. Battin.
Your End-of-Life Options: Medical Aid in Dying May Allow You or Your Loved Ones to Take Steps to Avoid Unnecessary End-of-Life Suffering, 33(4) ABA Experience Magazine 12 (July/August 2023).
Withdrawing Life-sustaining Treatment over Family Objections, KevinMD (August 24, 2022).
One Giant Leap for MAID, 20(1) Final Exit Network Newsletter 6 (Winter 2021).
Jack Kevorkian (database entry). American National Bibliography (2021).
Legal Aspects in Palliative and End of Life Care in the United States (UpToDate Database Entry). Waltham, MA: Wolters Kluwer (2021).
Resolving End-of-Life Treatment Conflicts: Comparing the COP in England to Analogous Mechanisms in Ontario, California, and Texas, Open Justice Court of Protection Project (June 23, 2021).
Physician Assisted Dying (UpToDate Database Entry). Waltham, MA: Wolters Kluwer (2021).
Palliative Care: Medically Futile and Potentially Inappropriate / Inadvisable Therapies (UpToDate Database Entry). Waltham, MA: Wolters Kluwer (2021).
“Do You Want Everything Done?”: Clarifying Code Status. Agency for Healthcare Research and Quality (AHRQ) PS-Net (Dec. 2019). With K. Steinberg.
Avoiding Late-Stage Dementia with Advance Directives for Stopping Eating and Drinking, KevinMD (October 6, 2019).
Medical Aid in Dying in Hawaii: Appropriate Safeguards or Unmanageable Obstacles?, Health Affairs Blog (August 2018)
National Standards for the Certification of Patient Decision Aids, National Quality Forum (December 2016).
Download the PDF
Oregon Shows that Assisted Suicide Can Work Sensibly and Fairly, 15(2) Final Exit Network Newsletter 7 (May 2016).
Advance Care Planning, Minnesota Health Care News 26 (November 2015).
Oregon Shows that Assisted Suicide Can Work Sensibly and Fairly, New York Times (October 7, 2014).
POLST Legislative Guide, Washington, DC: National POLST Paradigm Task Force, 2014. With M. Carley, M. Maag, C. Sabatino, A. Vandenbroucke, and R. Wolf
Career Guide for the Future Healthcare Attorney, 4(1) Health Law Colloquium 2 (2012).
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The Government’s Duty to Preserve in False Claims Act Litigation, (AHLA) Healthcare Liability and Litigation Practice Health Briefs E-Newsletter (Oct. 2012).
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Foreword to Stanley A. Terman, Peaceful Transitions: An Ironclad Strategy to Die How and When You Want, Life Transitions (2011).
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Medical Futility and Maryland Law, 19 Mid-Atlantic Ethics Committee Newsletter 1 (Winter 2011).
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Resolving Medical Futility Disputes, 36(2) DNA Reporter [Delaware Nurses Association], at 5-6 (May/June/July 2011). With D. Casey.
MOLST: A Cure for the Common Advance Directive, 35 Delaware Nurses Association Reporter 6 (2010-2011). With M. Klopfenstein.
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Comparing the FHCDA to Surrogate Decision Making Laws in Other States, 16(1) NYSBA Health Law Journal 107-111 (2011).
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A Conversation About End-of-Life Decisionmaking, 14(2) NYSBA Health Law Journal 91-107 (2009). With N. Dubler, A. Ouellette, T. Quill, R. Swidler.
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Philosopher’s Corner: Medical Futility, Mid-Atlantic Ethics Committee Newsletter, Fall 2007, at 6.
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